Tag: Rare Disease Day

Thursday, February 21, 2019

“It’s not about just surviving. It’s about actually living every day with this dreadful disease… you gotta keep moving every day… fighting every day.” – Lieutenant Colonel Chuck Schretzman (ret) – You’re probably aware of ALS but, what you might...

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Wednesday, February 20, 2019

“If we can make the correct diagnosis, the healing can begin. If we can’t, both our personal health and our economy are doomed.” – Dr. Andrew Weil – We all love offering solutions and solving problems, but how sure are...

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Tuesday, February 19, 2019

“One of the things that we have done… [is using data] to help build new biomarkers and basically help de-risk the drug development process.” – Dr. Marshall R. Summar, Children’s National Medical Center – The National Organization for Rare Diseases...

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