Rare Disease Day 2019
“Give blood, But you may find that blood is not enough.” – Pete Townsend – Every day millions of Americans wake up to do battle with their own bodies – and I guarantee that some of them work with you....
Read More
Tag: Rare Disease Day
Mystery Disease
Ill and No Answers Feverish and half-lucid, I lay on the exam room table, surrounded by bloody gauze and the discarded needles from five failed spinal taps. Monitors beeped quietly in the background and the quiet emptiness of that moment...
Read More
Wednesday, February 27, 2019
“She had blue skin, And so did he. He kept it hid And so did she. They searched for blue Their whole life through, Then passed right by – And never knew.” – Shel Silverstein, Every Thing on It –...
Read More